Tuesday, December 18, 2007
December 18, 2007-first radiation treatment
Thursday, December 13, 2007
December 13, 2007-moving forward with radiation
Friday, December 7, 2007
December 7, 2007-biopsy surgery was yesterday
Sunday, December 2, 2007
December 2, 2007-biopsy surgery Thursday
Tuesday, November 27, 2007
November 27, 2007-two lumps found
Dr. Raish gave me a prescription for an antibiotic for the possibility that this is just an infection. It could take a week or two to get my results from the biopsy, but Dr. Raish is going to get me scheduled for radiation just in case, so we’ll be able to start right away. If this is indeed cancer again I will be having radiation everyday for a month. I won’t lose the hair on my head, just the areas that they radiate. I will let you know this weekend when my biopsy surgery will be.
Wednesday, October 31, 2007
October 31, 2007-monthly checkup
Thursday, October 4, 2007
October 4, 2007-I got the okay to work
Friday, August 31, 2007
August 31, 2007-PET scan results
Friday, August 17, 2007
August 17, 2007-good doctor appointment
Wednesday, July 25, 2007
July 25, 2007-trying to figure out cause of rash
Tuesday, July 24, 2007
1st doctor appointment back in Mt. Vernon
My PET will take place 6-8 weeks after transplant, so will be sometime next month. I will have blood draws to check my counts every week for 4 weeks, then every other week for 2 months, then once a month for at least 6 months. 1 year from transplant they’ll check to see if I need my childhood vaccinations or not. 6 months from the transplant they talk about my immune system being back to normal.
I’m still taking the blood thinner shot every 12 hours, along with the pill form since Friday. I’ll find out later today if I can just take the pill form & stop the shot. That would be great since I think the shot has caused the rash I have again. It’s worse than last time though. Besides covering my whole body it’s on my face & head too. It is making me miserable. I don’t think I even fell asleep last night. I just want a prescription to make it go away, but all I’m told to do is put itch relief lotions on it. I just have to wait it out.
My eyelashes are pretty much gone. Some are really short & there are a few long ones left. My eyebrows have really thinned out too. Apparently it takes those longer than hair to grow back. My hair has started to grow back, but you have to look really close to see anything. I haven’t been feeling the greatest since Friday. There were a few times over the weekend I felt like I was going to black out & I had a really hard time getting up & out of bed. I’ve been very cold too, which is a side affect from this whole procedure. I’m just chilled to the bone & nothing seems to warm me up. Maybe it will help that I have another doctor appointment today & so I’m forced to get ready & get outside.
Tuesday, July 17, 2007
July 17, 2007-home in Mt. Vernon again
Monday, July 16, 2007
Update from Melba
We expected this to take longer based on what my boss went through, but her younger age, the reoccurrence only her second time, and the fact that she was in better health most likely were the factors for getting to this point sooner. She will continue on a coule of medications - some for up to a year - and will continue with Dr. visits on a regular basis - sure glad this can be done in Mount Vernon. She will need a PET scan in 3 weeks to look at the lymph nodes to see if the Hodgkins is actually gone and if it isn't she will have to go through radiation. So we still aren't totally out of the woods - and since we know our life on this earth is in God's hands and according to His plan we know that there are no guarantees. We've learned to take each day one at a time. Again, thanks for all your prayers and care and concern for her!
Sunday, July 15, 2007
July 15, 2007-discharged from Virginia Mason
Friday, July 13, 2007
July 13, 2007-finally off the morphine & feeling better
Picture from Michelle
Thursday, July 12, 2007
Thursday Update - Tricia
Update Melba
She still sleeps most of the time and still has throat pain so keeps pushing the button for the Dilaudid pain medication that she is now on instead of morphine. But it is a start and we are very thankful. She's still pretty groggy so not much good on the phone yet - maybe a couple more days. Not sure she's up to visitors yet unless you want to just sit and watch her sleep. Though she says her mouth hurts I checked and it is quite pink instead of white with mucositis - gums, tongue, and sides of her mouth tho she does have an open sore on the side of her tongue. So that's a great improvement, too. Friday will be one week in the hospital - I'll try to remember to ask a Dr. or nurse what the criteria is for her to get out or how long they think it may be yet.
Wednesday, July 11, 2007
T+8 - update evening Tuesday, July 10
Her vitals have been stable today - pulse, temperature etc. so that is good. Her white blood cells have gone up a little, finally, from 100 to 200 (need to be in the 5,000 - 10,000 range). Though the Dr. has now changed her diet to fluids like broth, jello, and other soft foods she is still not able to eat. They moved her to another room this afternoon cuz her room was across from the nurses station and they needed it for a patient on whom they needed to keep close watch. Anyway, from her new room she can see I-5 and Lake Union to the northwest - Den said he could see a lot of sailboats out this afternoon.
Tuesday, July 10, 2007
Tuesday Update - Melba
Talked to both her and Dennis Monday morning and hope I've got it straight - apparently when she went to the bathroom the pole that all the bags of fluids of various sorts hang on tipped over and she called for a nurse and no one came right away which sort of freaked her out because all these tubes are connected to her Hickman catheter. She later heard nurses in the hall talking about being blamed and she wasn't sure if they were talking about the fact that no one helped her to the bathroom and they'd be in trouble. She also didn't think the morphine line was working right and in the 'morphine state' of mind got a little upset and called Dennis about 8:00 and asked him to come right away. She knows that while on the morphine she doesn't understand all that is going on and wanted to make sure everything was working the way it should be. The new day nurse was very reassuring she said - we understand more than ever the need to have a caregiver with a patient at all times to ask questions and to help with the little things while nurses are busy with other patients. They have added IV nutrition now and more anti-nausea medication because, even though she doesn't feel nauseous, her stomach gets nauseated causing her to throw up, which is never pleasant. Denny said her pulse is down to 104 so that's reassuring. It still needs to get down to about 60 eventually.
Our prayer request is that the stem cells will hurry up and start kicking in to re-form her blood so she can begin to eat and drink the regular way and that the immune system will begin to be in place.
As to visitors - she mostly just sleeps so there isn't much point at this time. As to telephone calls - she's so groggy she can't always comprehend although I did talk to her about 6:00 Monday night and she sounded quite coherent. So, for a few more days we'll not encourage any visitors or phone calls. We've learned to take it a day at a time and to be patient. Thanks again all of you.
Sunday, July 8, 2007
Sunday Upate - Melba
My sister, Sharon, came from Auburn to spend time with Michelle Sat. allowing me to come back to the apartment to shower and have lunch, although I've been eating Michelle's meals cuz they keep delivering them. Sharon showed me bus schedules so I was able to take one back from the Northgate Mall Transit Center to the hospital - a nice gal named Meadow helped me with a bus transfer cuz I've never ridden the bus. There's no cheap place to park around the hospital - not like Seattle Cancer Care where they stamp your parking ticket to allow cheaper parking. Anyway, I managed to make my way back to the apt. on the bus, but did make a car trip back to VM cuz there were some things Michelle needed from the apt. - at least the parking garage is free after 6:00PM. She encouraged me to go ahead and sleep at the apt. as she's more comfortable with the routine and nurses now. Her attitude is good and we just pray for the stem cells to grow fast.
Saturday, July 7, 2007
Saturday Update - Melba
The morphine keeps her pretty well out of it so she wanted me to stay so I can ask questions and write down info. The sort of recliner in the room wasn't too bad, but we are across from the nurses station, which is noisy and of course, she gets checked for this and that all night or a beeper goes off on one of the pumps for morphine or fluids because there's an air bubble or something - not peaceful.
We are so thankful for medications and these great nurses and doctors. - course it would be less confusing if they all agreed on the way things are done, but they don't so it keeps us confused as to what's best. I'm learning to ask questions and suggest things - we just hope they all know what they're doing. :)
Michelle isn't up for visitors and with her white blood cells, red blood cells, and platelets so low she has not much to fight any infection at this point. Supposedly this will continue for at least 5 days so our prayer is that by next Wed. she will be on the upward swing.
Thanks again for your prayers for her - Melba
Thursday, July 5, 2007
July 5, 2007-still not in the hospital
I went into Group Health today & had my blood drawn & checked & was hooked up to IV fluids all morning. I go back tomorrow morning for the same thing, unless I don’t make it till then. If I get a fever or can’t eat or drink I have to head to Virginia Mason. I’m really struggling on what to do for the weekend. On one hand I’d rather stay out of the hospital if I can. It’s comforting to me to know I can just go into Group Health every morning & let them take care of me. On the other hand they’re closed on the weekends & then I have to worry about everything myself. I have a big decision to make by tomorrow. Ugh.
Tuesday, July 3, 2007
July 2, 2007-stem cell transplant successful!
The Seattle Cancer Care Alliance showed up at 11:30 am with 2 small bags of my stem cell frozen in liquid nitrogen in a big steel container. It took about 2-3 minutes to thaw out each bag in luke warm water in a container on the counter & just before the transplant I was given a big shot of Benadryl, that I felt instantly, so I was pretty out of it. Each bag took about 10 minutes to drip into me through IV. The only side affects I felt were a bad taste from the preservatives that were in with the stem cell & it made my throat scratchy & I coughed. As soon as the bags were done dripping into me the side affects stopped & I slept till about 3:30 pm. I feel fine right now, just tired. I have an appointment tomorrow morning to have my blood drawn to check my blood counts & to get IV fluids.
Friday, June 29, 2007
Friday
Update - (written Thursday)
Other than that little episode I’ve still been feeling good. My doctor seems surprised every time he asks me how I’m doing & I feel fine. He thinks part of it might be because I didn’t have radiation to break me down even more & I’m healthy otherwise. Hopefully I won’t be as sick through this whole thing as I was dreading. Depending on how I feel tomorrow night when I get done I might be able to go home for the weekend. Also depending on how I feel I might need to be hooked up to fluids for 4 hours on Saturday. Group Health is closed, so I would either have a nurse come in & do it or learn how to do it myself. I need to get ready to head out for my afternoon treatment again. Bye.
Tuesday, June 26, 2007
Seattle Chemo Treatment Day One (Michelle)
Monday, June 25, 2007
Update - Michelle (Sunday)
Monday, June 11, 2007
Michelle
The transplant will be Monday, July 2 and they will be admitting me to Virginia Mason Hospital on Tuesday, July 3. I will be in Seattle at least one month minimum after the transplant depending on how things go. I don’t have to do the neupogon shots to produce the white blood cells anymore. Two less shots per day is good with me. =) I meet with Dr. Feldmen, the oncologist at Group Health Cooperative, Friday, June 22 to go over everything. I’m sure not ready for this. I didn’t think it would be so soon.
Tuesday, June 5, 2007
Monday Update - Michelle
I feel pretty good for the most part-as long as I move slow. I get winded easily. I haven’t felt nauseous in while. Thank goodness. Even though I felt pretty comfortable at the apartment in Northgate it’s nice to be home.
Monday, June 4, 2007
Sunday Update - Michelle
Tuesday night I ended up in bed for the evening with a horrible headache. This is a side affect from the neupogen shot that makes the white blood cells. I was given a prescription that did a pretty good job with the pain the rest of the week. I had my stem cells harvested this morning from 8:30-11:00 am. Their goal was to collect 5 million & they ended up with 4.89 million, which was good enough for me to not have to go back for a second day of harvesting. Whew. If my red cell count & platelets were too low I would have had to have transfusions during the harvesting, but everything went fine. I go in tomorrow morning to have my blood drawn again & get discharged. They need to check my blood the next few days to make sure everything is going back to normal. I’m going to find out if they’ll let me do the rest of the blood draws in Mt. Vernon, so we can go home tomorrow.
The Seattle Cancer Care Alliance (SCCA) had a great bunch of people to work with. That place is absolutely wonderful. Everything is so easy to figure out there & runs so smoothly. The apartment we stayed at in Northgate also worked out great for us. Most of the time it took us about 15 minutes to get to the SCCA. My next step is to get a hold of Group Health to find out what’s going to happen next.
Sunday Update - Melba
In the afternoon Michelle got a call from SCCA to say that with the 8.2 white count and whatever they found in the extra blood draw told them it is time for the apheresis tomorrow morning. We have to be there at 8:30 for blood draw and then harvesting. The gal told Michelle it will be 3 hours, but we will have to stick around for further report later in the day to get the 'for sure' you're done report. So we could be home by tomorrow night! She has had headache today although not really horrific - she takes the prescription stuff right away to keep it at bay.
Thursday, May 31, 2007
Update - Tricia
I do know after her first day (Tuesday) of having tests and blood drawn, she started feeling nauseous at the clinic and when she and my mom got to the apartment at about 5:00 p.m., she was out for the evening. When I spoke with her yesterday, though, she seemed to be doing fine.
As of yesterday, they still only have limited access to email and the internet, which should be resolved soon. For now, despite the circumstances, I am personally grateful for the time it can give my mom to read, walk and relax a bit in the evenings!
Tuesday, May 29, 2007
Second Chemo - Michelle
I feel okay for the most part, just a little gaggy feeling off & on. I started the neupogen shots again (to produce the white blood cells). This time I’m taking 2 shots a day & 4 total between the Lovenox (blood thinner). I’m still getting conflicting stories on when the harvesting of the stem cell will take place. I’m told we’ll be in Seattle 1-2 weeks & I’m also told the Seattle Cancer Care Alliance will be harvesting them this week. We’ll just have to take it day by day, as I’ve heard things can change often.
Friday, May 25, 2007
The Quilt - Tricia
"I know Michelle is on everyones mind and in your prayers. The question is what can we do for her. A friend came up with an idea, she did for her daughter. A prayer quilt. Melba said she does get cold and this is something she can take with her and curl up in. Anyway, I hope you can all help with it. I have some Muslin material I will cut up into squares. Each of you will be getting one. Each of you will have to get a special pen that writes on fabric and then write her a message, prayer, inspiring quote or something funny. When I get them all back my friend will help me put them together and she will quilt it for me. Hope you all can help."
Last night, she went to see Michelle in the hospital, and presented her with the quilt. Here are some pictures!
Wednesday, May 23, 2007
Second Round of Chemo - Melba
The really great news is that Michelle is finally feeling ok again. She has had 3 back to normal days, which, I hope, means that the blood clot is dissolved. She asked Dr. Raish if she could work today after chemo, but there are 3 co-workers who are sick with colds (and are working) so he said at this point it wouldn't be a very good idea. Her health and staying healthy is of utmost importance right now. So, praise the Lord that she is feeling well, that her blood counts are
normal, and that we are getting mentally prepared for our stay in Seattle - our hope is that it will only be a week, but are prepared for longer if needs be.
Thanks again for all your prayers - we appreciate them and are so thankful to know the Lord is beside us every day no matter what we're going through.
Monday, May 21, 2007
Update - Michelle
Wednesday I have 1 hour of chemo. and Thursday I have my 24 hour infusion of chemo. overnight at Skagit Valley Hospital. I think the earliest I’ll be moved over to the hospital from the cancer care center will be mid to late morning. Hopefully I’ll be finished by early to mid afternoon on Friday.
My hair started coming out fast over the last couple days. Last night I didn’t sleep very well because I could feel it on my pillow & was afraid of what I was going to see in the morning. I just laid there & tried not to move till it was time to get up. Today was pretty upsetting for me. When I went to brush my hair huge chunks were coming out & leaving bald spots. I went over to my mom & dad’s & had it shaved off. I know I’ll get used to it eventually. It was just really hard to have to do that.
Next Monday, Memorial Day, my mom & I leave for Seattle to have my stem cell harvested at the Seattle Cancer Care Alliance. As of right now we’ll be down there anywhere from 1-2 weeks. We’re staying at an apartment someone is kindly letting us use for free in Northgate right off the freeway. I’m still hoping to find something closer to Virginia Mason Hospital for after I have the transplant. I have an appointment with my oncologist this Tuesday afternoon. I’ll let you know if we learn anything new or different.
Wednesday, May 16, 2007
Update - Michelle
Tomorrow will be a week of taking the Lovenox (blood thinner) & I can’t tell that anything is any better. I did use some Afrin nasal spray & took DayQuil before the spaghetti dinner fundraiser & it seemed to take the edge off for the first couple hours I was there. By the end of the evening my headache was back with full force & I ended up throwing up about 10:30 pm that night. We think it was from the constant pain from the headache & nothing to do with the chemo.
I met with my oncologist yesterday & he told me to try taking Vicodin. I took it right after dinner when I had a full stomach. I’m always scared to take it cuz it’s made me dizzy before. It seemed to take the edge off a little bit. I just took it this morning after I ate breakfast & it seems to have done the same thing. I don’t want to be taking that all the time though cuz I can’t drive then. So we’ll see if it works throughout the day.
Dr. Raish also mentioned taking the catheter out if this discomfort is unbearable. I’d have to have it put back in in about 2 weeks for the harvesting though, so I don’t want to do that. I don’t think we’re going to use that option. Monday I was told I could stop giving myself the neupogen shot (to produce white blood cells) until after my next session of chemo. Then it will be 2 shots a day. The shot giving has gotten much more bearable for me. I think I’m used to it now.
Yesterday I noticed my hair is starting to fall out-now that I’ve just gotten used to not covering it with the bandana. =( Oh well.
Tuesday, May 15, 2007
Fundraiser - Melba
The Spaghetti Dinner fundraiser at Mount Vernon Christian School went super well - served over 450 people. Michelle stayed the whole 3 hours to visit and we were overwhelmed with the support from so many family members, friends, co-workers from Birch Equipment and her former place of employment-Concrete Nor'west as well as Denny's co-workers and school families and Melba's employer. It was awesome!
As Denny, Nathan, and Melba were counting the donations Michelle called - the headache caused so much nausea she was vomiting. So we rushed over to check on her and get 7-up and ice packs and get her to bed - not fun. It was quite late so the donation amount will have to wait. But we're grateful for the huge support and in a general glance can tell that God has used such wonderful friends and family to alleviate the financial concerns and we know He will take care of the rest in due time.
Monday, May 14, 2007
Prayer - Tricia
As for tonight, people who are sick need to take special care not to hug or shake hands with Michelle, as her immune system is weaker than the average persons.
Pray specifically that she will feel well tonight so she can enjoy the company and encouragement of so many people who care for her.
Friday, May 11, 2007
Week Update - Michelle
The Week So Far - Melba
Tuesday, May 8, 2007
Melba's Version
On the positive side, she has not had the possible side affects of nausea, vomiting, etc. etc. - still, it's hard to be jumping for joy when she feels lousy. But she is still being more courageous than I would be - gave herself her neupogen shot, which builds up the white blood cells. And she cleans the 2 tubes of the Hickman catheter, which takes scrubbing one's hands for 3 minutes (like ya see the doctors and nurses do on TV before they go in to surgery), iodine cleaning of the opening then attaching the syringe to the Hickman and pushing the Heperin through, making sure that the tube is closed afterward so blood can't escape. It all must be kept almost sterile to keep out any germs or bacteria and most people leave the whole job to the professionals and she's determined to take care of that herself - doing an awesome job!
We will try to keep you up every few days or once a week as time goes on. Keep her in prayer for her body to feel better soon.
First Round of Chemo - Michelle's Version
Starting Tuesday I was feeling tightness in the skin around my neck & chest. It was very constricting feeling & painful. I was given a steroid in the hospital to reduce the swelling & pressure-something about releasing water that was built up. I don’t really know. They think I was having an allergic reaction because my neck & chest were all red too. And they think anxiety had to do with it, so gave me anxiety medication. I sure didn’t get very much sleep overnight at the hospital. There are people waking you up all night long.
I didn’t finish with my last hour of chemo. till Friday afternoon about 4:00-4:30 pm & by the time we had discharge papers it was 7:00-7:30 pm. I didn’t like being in the hospital. It didn’t seem like anyone really knew what was going on with me there. I would much rather be over at the cancer care center where cancer is their expertise. The tightness in my neck only got worse by Saturday afternoon & I ended up in the emergency room for 5-6 hours Saturday night. They gave me the same stuff they did in the hospital. It only works a little bit for a little while & then it’s back again. They’ve had me drugged up for the last few days thinking that would help, but I can still feel everything. I quit taking everything today, so I’m not constantly sleeping. I don’t even feel like I can function with this thing with my neck & chest. I have an appointment tomorrow morning. Hopefully something will be figured out about it.
I don’t know if I’ll be working this week or not. It all depends on if this tightness goes away. If it weren’t for that I think I’d have felt fine this weekend. I started giving myself the neupogen shots Saturday night. Neopogen stimulates the growth of white blood cells. And these are the cells that will eventually be harvested (taken out) for the stem cell transplant. I do not like giving that shot to myself. I start breathing heavy & get hot & feel like I’m hyperventilating & it freaks me out. Last year when I would get these shots I would always be in pain. So far I haven’t had any pain from them. Woo hoo! There’s a plus to report on. =)
Monday, May 7, 2007
First Round of Chemo - Day 2
Michelle came through the 1 hour chemo on Wed. just fine - and the 1 hour Thursday was ok too, and she was ok yet when I stopped in at the hospital this morning about 9:30. But as the day progressed her neck started swelling and got very red. They think it was an allergic reaction to the chemo so prescribed more pills. Denny stopped in after school and stayed until I got there from work - she did the last 1 hour chemo and was really feeling punk by then.
Just watching the process of getting her checked out from when I got there a little after 5:00 until the time we left sure hasn't left me with a lot of assurance in the medical system - the right hand doesn't seem to know what the left hand is doing. Communication from Oncology to the hospital and over to the pharmacy isn't the greatest so it was a bit discouraging getting all the loose ends tied up to get out of there finally by 7:00pm. There doesn't seem to be a lot of efficiency - is it this way in most hospitals and clinics? Now I know why my boss's wife stayed with him 24/7 through his chemo etc.
It was overwhelming to see and hear all the instructions for cleaning the Hickman tubes, how to give herself the nupigen shots to build up her white count, how to keep everything clean and dry, etc. and keeping track of all the medications she has to take - whew!
Anyway, we got her home and settled in - think she was ready for a good night's sleep.
PS. For anyone interested or anyone who asks where to send donations Michelle has a new 'Donations' account set up at Skagit State Bank for this. The account was just set up Tuesday for this purpose. Hope that helps with any who ask.
First Round of Chemo - Day 1
Michelle had her first chemo drug Wed morning at the MV Oncology. She was a little tired as had to get up about 5:00 for training, which Birch Equipment does each Wed. morning at 6:00. She went to work then from 7:00 to 8:30 - did the chemo and went back to work about 11:00 (amazing how a 1 hour treatment always takes so long - no rush to get things going and done). Anyway, she was a bit tired and had a headache, but made it for the day.
Yesterday, Thursday, she had to be at Oncology at 8:00 to start another kind of drug drip for an hour or 2 - then they walked her across the street to the hospital to do the 24 hour drug drip. Again, there seems to be no rush and they didn't get her started until 2:30 (they didn't seem to know she was coming even though Oncology had called them last week and called again on Wednesday - there seems to be some lack of communication here - which isn't too comforting to patients, but I've heard from someone who works there that they are terribly short handed - like 20 positions) - which means she won't be done with that one till about 2:30 today and has to do one more 1 hour drip. Hopefully, she'll be done by 5:00 but we aren't holding our breath. She had lots of visitors all day and evening so had no time to get bored (or get a nap). Denny had a track meet so didn't get home till 7:30 at which time he, Nathan, and I went back – Michelle and a friend were watching a movie so we didn't stay long - just brought her some earplugs, her comforter and some mail. She brought her own pillows - amazing how different hospitals are now days – another friend visited several hours and brought her 8 month old with.
I'll be stopping in this morning to see how her sleep went - she had an air mattress that kept decompressing - (for bed sores) and wasn't very comfortable. And we know hospitals in general aren't very restful so she'll probably hit her bed early - has to work tomorrow so will be exhausted by Sunday. But she's determined to work as much as she can.
The next treatment is supposed to be May 23- here in MV Oncology again.
The Spaghetti Dinner fundraiser is May 14 - Monday 5-8 pm. Sara Rothenbuler, Birch Equipment’s owner, was to send out newsletters to 2000 customers with that info as well as info for the bank account set up at Skagit State for donations. We are hearing of more and more people who are forwarding the fundraiser info to all their friends and co-workers - so we hope it goes well.
Will try to keep you all updated - we thank the Lord for all the encouragement and care being given to her and to us - the Lord certainly gives what we need as we need it - in so many forms from so many people. Not that I would recommend going through any of this kind of thing just to be able to be given all this care, but it is so amazing! Have a great day and God bless you all.